At Hope for HIE, we hold the providers who showcase their commitment and passion for research and improved clinical care practices for those impacted by HIE’s various outcomes near and dear to our hearts. So when Dr. Laura Gilbert, a pediatric neurologist at Lurie’s Children’s Hospital, teamed with us during Cerebral Palsy Awareness Month to shed light on a prevalent […]
When you think about the different impacts of HIE, your mind may jump to more well-known conditions like epilepsy or cerebral palsy. But here’s something you might not have heard: around 30 to 50 percent of newborns with moderate to severe HIE might also experience Acute Kidney Injury (AKI) in their early days. And for some of them, there’s a […]
Survey link: Tinyurl.com/HIESleep We’ve heard from thousands of families that sleep issues are one of the TOP unmet needs of our community, and across all outcomes and impacts, impacting the entire family. NOW IS YOUR CHANCE TO BE HEARD & DRIVE RESEARCH!!! We are a part of a research proposal to explore sleep issues with HIE, beginning in the NICU […]
As a parent or caregiver of a medically complex child, you’re likely aware of the discomfort they may experience when visiting the dentist. From navigating inaccessible spaces to managing heightened sensitivities, every aspect of the dental visit can pose unique challenges. It may feel as if you’re constantly navigating these hurdles in order to provide them with the oral health […]
It’s no secret that many people have some aversion to the dentist; those connected to medically complex children are likely even more familiar with the challenge of maintaining oral health and accessing professional care. Dr. Matt Mara, DDS., a practicing general dentist, assistant professor of general dentistry at Boston University, oral health researcher, Hope for HIE medical advisory board member, […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
