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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Crystal’s Story: Focus on Where You’re At, Not Where You Should Be

April 30th, 2022  | HIElights of Hope

At the time of Maddie’s birth, Crystal and her husband, Kevin, were residing in San Diego. Crystal was working on the administrative side at Kaiser Permanente, while Kevin worked in the finance department of their local children’s hospital. Up until the thirty-seven week mark, Crystal’s pregnancy seemed to be running smoothly, so never did she picture she’d become so intimately […]

Jennifer’s Story: Getting a PhD in Charlotte

April 30th, 2022  | HIElights of Hope

Jennifer had come to love the life she had built—she was doing research in chemical engineering, a field she was deeply passionate about, studying to land her dream job of becoming a lecturer, and finally en route to giving her daughter Izzy a sibling. But, in November 2019, with the birth of Charlotte, Jennifer’s life as she knew it changed […]

Michelle’s Story: Single, but Never Alone

April 30th, 2022  | HIElights of Hope

Michelle’s HIE journey has come with more than its fair share of obstacles—not only does her daughter, Briana, have a severe outcome, but she has also had to navigate the world of taking care of a medically complex child as a single mother. Yet, while there were days where Michelle just felt too alone, and everything seemed too overwhelming to […]

María’s Story: Having a House but Not a Home

April 30th, 2022  | HIElights of Hope

Cuando llegue el momento nos reconoceremos. Te amamos. Siempre.  -Papá y mamá María lives in Montevideo, Uruguay, with her husband, Vittorio. As a little girl, María had always dreamed of becoming an architect, and, for a while, she was living her dream. But, in 2017, when her first child, Francisco, suffered from severe brain damage due to HIE at birth, […]

Barbara and Barry’s Story: Looking Beyond the Parents

April 30th, 2022  | HIElights of Hope

Barbara and Barry are both professors at the Brown School of Social Work at Washington University in St. Louis. In September of 2015, Barbara and Barry were excitedly anticipating the birth of their first two grandchildren, Leah and Elana. As parents to Becky, they were overwhelmed with joy, not only that she would be starting the wonderful new journey of […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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