HIE shifts family dynamics — whether a child born with HIE is the first, and siblings come later, or is born somewhere in the middle, or is the last baby, it impacts the siblings of the family in a myriad of ways, no matter the outcome.
Hope for HIE is committed to fostering connections to help families navigate through the unique circumstances that pop up — whether that is medical complexities, balancing family time with therapies and appointments, bereavement support and more.
For the bereaved fathers. A reflection on Nick, from Sara. Nic is a wonderful dad to every child God has blessed our family with, whether it be for one day or a lifetime, but it has always been a decision as parents for each one. Ansley, though…one day he came home from work and I told him, “We have a […]
Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve access to equipment in areas of disparity. Learn about the nuances of her journey and the connections that have helped her advocate for cultural change and the reduction of stigma surrounding disability. […]
We are excited to welcome Dr. Monica Arroyo, pediatric neurologist, to the Medical Advisory Board bringing her expertise in neonatal neurocritical care to enhance communication and whole-family care and support as collaborations are built through the board initiatives. Her full bio is below. Dr. Monica Arroyo is an attending Pediatric Neurologist at Joe di Maggio Children’s Hospital in Hollywood, Florida. […]
Today is Global Accessibility Awareness Day (GAAD), a day marked by spreading awareness and promoting digital access and inclusion for the over 1 billion people worldwide with impairments or disabilities. Now more than ever, when there is such an increased reliance on technology for daily living, it is essential that we think about ways to make digital resources accessible to […]
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