After the traumatic birth of her daughter, Brittany Bemourtrusting was terrified to think about going through pregnancy again. But it was an adventure she had wanted her whole life. Brittany’s daughter Dreaven suffered HIE at birth, leading to a NICU stay and a big change in how their family had expected parenthood. When their daughter was young, Brittany wasn’t sure […]
Making the trip from Tanzania to Kenya to visit the village where Eleanor Shiru Wanjiru Muigai-Mnaro grew up was important to her. The adventure would allow her 1-year-old son Malik to meet his 99-year-old great grandfather and see the village where his mother lived for 11 years, she said. “It was also a chance for him to enjoy the little […]
Life with HIE regularly takes its twists and turns. And sometimes those happen to be literal twists and turns, cycling through Cape Town, South Africa in the world’s largest timed cycle race. That’s the adventure that Nura Mohamed and her family went on just this spring. Nura, who is 14 and has HIE, may not have gotten to experience the […]
Long nights in the NICU sparked a dream in one HIE mother, and she wasn’t going to take no for an answer. Sara Baker Pendleton met her daughter, Ansley, at 2 weeks old in the NICU, and was so struck by her perfect little feet. The way she held them reminded her of first position in ballet. Ansley’s prognosis was […]
Having a baby with HIE quickly became isolating for one mom, who desperately was looking for support. Nicolette felt like she was drowning, trying to process emotions she couldn’t even put words to in a world she never knew existed and didn’t understand, she said. A social worker told her about a Facebook group where she could find support called […]
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