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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Finding hope

Finding hope

November 29th, 2016  | Family Stories  |  By ANN GOELLER

In the days after their son was born, the news kept getting worse. Baby Cole suffered HIE at birth after getting stuck in the birth canal and aspirating meconium. He was having seizures, he needed emergency cooling treatment hours away from home and tests of his brain activity weren’t looking good. Sara Ames Saltzman felt alone and terrified. She didn’t […]

A new community

A new community

November 22nd, 2016  | Family Stories  |  By ANN GOELLER

Throughout our lives, we form communities. Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with. I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one […]

Have hope, will travel

Have hope, will travel

November 20th, 2016  | Family Stories  |  By ANN GOELLER

For one HIE mom, hope has taken her across the country this year. Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.” For Betsy, the trips to meet other HIE families at […]

Why I give hope

Why I give hope

November 15th, 2016  | Give Hope  |  By ANDY CHRESTMAN

I remember standing in our son’s bedroom the day after he was born and bracing myself for the real possibility that we would lose our first and only child. Kohler Henson Chrestman was born the previous day and, because of an abrupt lack of blood and oxygen to his brain, he was born with severe, global brain damage. The ensuing 24-hours were […]

Loving your school

Loving your school

November 8th, 2016

To some, it looks like a new swing and a coating of asphalt. But to me, the improvements to my daughter’s school playground are so much more. The $5,000 project that teachers, students and families donated to meant that my little girl was valued at her school, and not overlooked. Her school understood the importance of helping her play alongside […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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