The pictures show a family sharing an activity they love together — finally. Two years ago, Elyse learned about a program from her daughter that would allow her son Miles, who suffered HIE as a baby, to be able to ski. “She came home and was so excited to tell me how there were kids with different disabilities skiing and […]
The message made my heart drop. Another family hearing those three letters: HIE. And this time it was someone I had known almost my entire life. My childhood friend Sara had gone into labor with her baby boy. And hours later, she sent me a message asking if we could talk. The diagnosis: HIE or hypoxic ischemic encephalopathy. She had […]
In the early days after his son Grey was born, Nick Burton turned to his words to try to process the emotions he was feeling. What resulted has resonated with so many of our families for the raw emotion and honesty in his words. What should’ve been A dream unfulfilled, but forever imagined So unextrordinary a fantasy, unrealized Should’ve been […]
In the early days after his daughter was born, David Ford felt overwhelmed and scared. David and his wife Heidi were overjoyed their daughter survived such a difficult start to life, but were unprepared for how to deal with the emotions and questions over the uncertainty of Scarlett’s future, he said. While searching for more information about HIE, David and […]
When he was asked to join the board for Hope for HIE, Nick Burton immediately knew he wanted to help families, just like they had helped his. Nick’s son Grey suffered HIE at birth. And that has changed their family’s entire life. In addition to quitting his job to stay home with Grey, Nick also has gotten used to having […]
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