Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy


A special bond

A special bond

November 27th, 2017  | Family Stories  |  By ANN GOELLER

What started as a bond over the internet has grown into a lifelong friendship. For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls — born only a day apart — suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they […]

Give HOPE this holiday season

November 16th, 2017  | Give Hope  |  By ANN GOELLER

As we kick off this year’s holiday giving campaign, we want to take a moment to show you where your donations go when you make a donation to Hope for HIE. We are a non-profit organization focused on providing resources and support to the families of children who have suffered HIE, or hypoxic ischemic encephalopathy. We are entirely run by […]

Why Mama Gump is a Great Role Model for Other Special Needs Parents

Why Mama Gump is a Great Role Model for Other Special Needs Parents

November 14th, 2017  |  By BETSY PILON

Maybe Mama Gump went a little far “ensuring Forrest’s education” on a hot summer evening with the principal, but as a special needs parent, I watched Forrest Gump in a whole new light, after my son was born and diagnosed with hypoxic ischemic encephalopathy and cerebral palsy. This life is a bit more complex raising and trying to empower a child with disabilities, […]

Three Years Into the Journey

Three Years Into the Journey

November 13th, 2017  | Family Stories  |  By AMAL TOLBA

What I wish I understood 3 years ago when I boarded on this journey: I wish I knew that I would cope no matter how tough it gets That I should have enjoyed my baby every second instead of worrying about the future that I couldn’t stop or change That I would love her no matter what That CP is […]

Fulfilling our mission

Fulfilling our mission

October 1st, 2017  | Advocacy  |  By ANN GOELLER

Part of our mission at Hope for HIE is advocating for our community in many ways. Last year, we worked with an amazing group of researchers at Neobrain in Canada on an educational video for parents in the NICU, whose child had suffered an HIE event and their baby was set to go through cooling. Now, we are teaming up […]


One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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