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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Grieving together

Grieving together

January 1st, 2017  | Family Stories  |  By ANN GOELLER

When she lost her son, the support from her HIE family immediately flowed in. Jessica Mizell had learned about Hope for HIE through a social worker at the hospital her son, Waylon, was transferred to. She had already gotten to know many other HIE families during her journey. They had celebrated together, vented together and grieved together. “I didn’t feel […]

Feeling less isolated

Feeling less isolated

December 22nd, 2016  | Family Stories  |  By ANN GOELLER

In his short 15 months, Woodrow David knew love and life, and his mother is working to keep his memory alive. For Kate Goudy, her son Woodrow, who was severely injured at birth, will continue to serve as an inspiration to be the woman and mother who would have made him proud. And Hope for HIE has helped her along […]

Support for everyone

Support for everyone

December 13th, 2016  | Family Stories  |  By ANN GOELLER

When Nykole Nichols has a question about her son, she can’t always turn to the friends and family she always thought she would. With Jude, who was injured at birth and is severely affected, it’s often more complicated. Their questions are about equipment, specialists and therapies. “We can’t just call our family or friends and ask for advice like typical […]

Clicking with another family

Clicking with another family

December 8th, 2016  | Family Stories  |  By ANN GOELLER

A mom’s search to find someone to take her family’s photos ended up with a new connection between two families impacted by HIE. Jamie Burt wasn’t happy with her 4-year-old daughter Remilyn’s school photos since she had her eyes closed and wasn’t looking at the camera, but also wasn’t sure who should take family photos for them. For HIE families […]

Support in the hardest times

Support in the hardest times

December 6th, 2016  | Family Stories  |  By ANN GOELLER

When she had to go through the toughest decisions and emotions in her life, Lauren Macke found support from a group of parents who had been there. Lauren’s son Jonah was born early and went without oxygen for 14 minutes. He was diagnosed with HIE and went through cooling therapy. Testing showed his brain damage was extensive, and Lauren was […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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