For some of our HIE children, some type of orthotic (sometimes called a brace) may be necessary to help with development, ambulating and balance. There are a few different types of orthotics that may be considered. For some children, simply a shoe insert might be a good tool. For others, a solid or articulated (hinged) Ankle-Foot orthosis (AFO), or a short Supra-Malleolar […]
Hope for HIE is a wonderful organization full of other dedicated families in similar situations. Every day new parents join on Facebook or read this website full of questions, uncertainty, and searching for hope. Maybe you got here because you searched for “What is HIE? Hypoxic-Ischemic Encephalopathy.” I feel like I’ve gained some perspective on what our process was like regardless […]
A devastating loss suffered by two families brought them closer together than they could have ever imagined. Becky and Krista connected through Hope for HIE’s online forums over the loss of their children to HIE. They got even closer when discussing the fears of having another baby after the trauma they had both had in their previous birth experiences. They […]
For families of children with an HIE diagnosis, the journey can be lonely. Often, other families don’t look like ours. Their lives aren’t the same. Their routines are different. Hope for HIE has been organizing retreats focused on moms for the last four years, which for so many women have been life-changing, giving them a chance to connect with moms […]
We bet you can’t look at this photo without smiling. HIE kiddo Remi got to try her hand at skiing with an adaptive ski program. And she had a blast! Remi’s mom heard about the program when they went to a ski show at the beach. Her husband insisted they sign Remi up. Jamie was nervous at first, but then […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
