His blue eyes lit up the room and his smile, though rare, was beautiful. His life on earth was not long enough, but in his 17 months, baby Will touched so many lives, his mother Tara Oliver said. Will suffered HIE after his mother’s splenic artery ruptured when she was pregnant, causing massive internal bleeding. Will was later […]
For 7 years, Keira Chilvers had no idea other families were going through what she was with her son Zane. Zane, who is now 12, suffered HIE at birth. After a rough start in the NICU, he was sent home and several diagnoses came in the years after, including epilepsy, cortical vision impairment, diplegia cerebral palsy, microcephaly, scoliosis and thermo […]
After her son was born, Betsy Pilon left the NICU with a diagnosis of HIE, two pamphlets and the dreaded words of “wait and see” ringing in her headed. Her son Max was born via emergency C-section after he stopped moving at 37 weeks and for five days was on a ventilator and was treated with the cooling protocol. Now, […]
After her son was diagnosed with HIE, Jill Uswajesdakul wanted to find other families like hers that she could connect with. But when she asked about any groups or organizations that existed, no one knew of any. She doesn’t want other families to have that experience. “Just someone to say ‘I’ve been there too,’ and there was nothing. It was […]
When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet. The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members. Karissa learned early on that her […]
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