The Neonatal Seizure Registry (NSR) is an alliance of nine US centers that have worked together since 2012 to study the causes and consequences of neonatal seizures. Over the past four years, the NSR team has recruited and followed 300 children with neonatal seizures to understand how to the length of treatment may influence development and the risk of epilepsy, as well […]
Hope for HIE was featured on the American Academy of Neurology podcast “Neurology Minute” for HIE Awareness Month. Take a listen below!
Life chillaxing on the hammock was beautiful… feet extended …free floating in pure air. Breeze at my back. Of all the things I miss about life before quarantine. I miss Noah’s hammock the most. He was never without it. Most never have taken any note of it. It took me 15 years to weave it. I picked each strand of […]
Eliana Mae was born into this world at 6:38 pm on September 18th 2015. Despite all the odds against her she fought her way through 7 weeks in the NICU. We were never given an official life expectancy lecture, what we were given instead were encouraging words of hope from her neurologist. He informed us that the brain is a magnificent […]
Today is HIE Remembrance Day, a day to remember and honor those lost to HIE. Hope for HIE wanted to create a day dedicated to the little ones who lost their lives due to HIE and their families, and selected April 20 as that day. Today, we share stories of those children, reflect on their lives, and create a wave […]
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