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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Being in the moment

Being in the moment

May 30th, 2016  | Family Stories  |  By ANN GOELLER

Three years into her journey with HIE, one mother took a moment to reflect on how far her family has come. Jen Greenway gave birth to her baby girl and immediately started on the roller coaster of HIE. Jenessa Hope was not breathing, and had to be resuscitated. Her parent watched helplessly as doctors worked to help their baby girl […]

Never give up

Never give up

May 26th, 2016  | Family Stories  |  By ANN GOELLER

“When you think you’re at the end of your rope, tie a knot and hold on.” It’s a quote that one HIE mom wants to share with other families on their HIE journey. Hope is never giving up, Jessica Mizel said. Jessica’s son Waylon suffered HIE at birth. Jessica had a normal pregnancy, but a week before her due date, […]

Be Fearless

Be Fearless

May 22nd, 2016  | Family Stories  |  By MELISSA WALLER LONGSHORE

It was field day and all the children were going down the Slip and Slide, including the special needs classroom. The only child not going down the Slip and Slide was my child. He was at the bottom watching everyone slide. In the corner of my eye, I saw him and I saw the look in his eye. It was […]

Shifting hope

April 29th, 2016  | Family Stories  |  By BETSY PILON

For Julie Keon, hope was initially most intense in the early years of her daughter’s life. Since then, her hope has shifted, but that doesn’t mean she is hopeless, Julie said. “I have learned that hope is most intense in the early years but as life presents itself and you begin to settle in to how things will be. It […]

The power of hope

The power of hope

April 27th, 2016  | Family Stories  |  By ANN GOELLER

In the year since their daughter was born, hope has taken on multiple meanings for Justin and Gracielle Yan. From the joy of seeing little Mila open her eyes to looking forward to her smile, hope has become an important part of their lives, Justin said. “I could never have guessed how powerful that word would be for the next […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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