fbpx
Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Finding the missing piece

Finding the missing piece

April 18th, 2016  | Family Stories

For 7 years, Keira Chilvers had no idea other families were going through what she was with her son Zane. Zane, who is now 12, suffered HIE at birth. After a rough start in the NICU, he was sent home and several diagnoses came in the years after, including epilepsy, cortical vision impairment, diplegia cerebral palsy, microcephaly, scoliosis and thermo […]

Lifting the fog

Lifting the fog

April 15th, 2016  | Family Stories  |  By ANN GOELLER

After her son was born, Betsy Pilon left the NICU with a diagnosis of HIE, two pamphlets and the dreaded words of “wait and see” ringing in her headed. Her son Max was born via emergency C-section after he stopped moving at 37 weeks and for five days was on a ventilator and was treated with the cooling protocol. Now, […]

Enduring the Storm and Finding the Sunshine

Enduring the Storm and Finding the Sunshine

April 11th, 2016  | Family Stories  |  By BETSY PILON

After her son was diagnosed with HIE, Jill Uswajesdakul wanted to find other families like hers that she could connect with. But when she asked about any groups or organizations that existed, no one knew of any. She doesn’t want other families to have that experience. “Just someone to say ‘I’ve been there too,’ and there was nothing. It was […]

Finding her own hope

Finding her own hope

April 5th, 2016  | Family Stories  |  By ANN GOELLER

When Karissa Shepherd’s son was born and she saw the words Hypoxic Ischemic Encephalopathy in his records, she turned to the internet. The Australian mom found a small Yahoo support group and a blog by one of the Hope for HIE founders. When a Facebook group formed, Karissa was one of the first members. Karissa learned early on that her […]

From confused and lonely to building a community

From confused and lonely to building a community

April 1st, 2016  | Family Stories  |  By ANN GOELLER

Australian mom Claire Greer is one of the co-founders of Hope for HIE, which grew out of the vision of a few moms who wanted to help parents of children with HIE, or Hypoxic Ischemic Encephalopathy, connect. She shares her HIE story and how she has found hope in her journey. Tell us about your little one with HIE, from […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.