Following a beautiful, healthy pregnancy, I went into labour on the morning of December 7th, 2019. I woke up at about 5:30 am having some light contractions. I stayed in bed until about 7 am. When we got out of bed, we made raspberry pancakes for breakfast – something I had been craving. Danyel had planned to do his usual […]
Hope for HIE has assembled a multidisciplinary board to provide insight, scientific direction, and expertise to the Foundation from leading academic and medical institutions around the world. The members of the Medical Advisory Board are recognized experts in treating patients, and leading research on HIE, hypoxic ischemic encephalopathy, a type of brain injury that affects roughly 2-3 per 1,000 live […]
We know now is a difficult time for all as we try to navigate through the COVID-19 pandemic. As we serve a global community, we want to share some insight, guidance, and reassurance to our families. We have heard from many of you that you are anxious, nervous and scared. We know you have questions about how to get through […]
Waiting. Watching. Hoping. Waiting some more. Watching. Waiting. Hoping. That’s what this HIE journey is all about. And it’s what makes it so damn hard. One day, you’re minding your own business enjoying your life with your head in the clouds, and the next minute your world, your hopes and your dreams are shattered by your child’s hypoxic ischemic encephalopathy […]
A kid in a candy store. That’s the best way to describe the feeling I got walking into the vendor hall at the Assistive Technology Industry Association’s (ATIA) annual conference this January. Stepping into this huge convention center filled with every possible piece of assistive tech hardware and/or software programs. Being surrounded by leaders in fields of AT and special education, such […]
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