After his son was born, Andy Chrestman quickly got a crash course in brain injury, and found there are no simple answers. More than a year into their journey of trying to find answers, Andy and his wife Sarah came across Hope for HIE and found an instant community. “The brain is the control center of our lives and when […]
After her son was born, Lindsay Vanzandt just wanted answers. She found medical journals, with tons of terms she didn’t understand. And then she found Hope for HIE, and so many other families just like hers. “We immediately felt at home in the Facebook group, where we got more answers and more hope than we did at the hospital,” she […]
After her daughter was born, Megan Ross was desperate for answers. But all the doctors could tell her was that little Cari started having seizures 15 hours after birth due to suffering a loss of oxygen at some point before or during birth. They had no idea what their future would hold. “No doctor could tell us what she would […]
Above the grief, the worry and the exhaustion, the loneliness was one of the strongest feelings. For months, the words of doctors in the NICU rang in her head: “HIE is rare.” All Annie Goeller could feel was alone. Annie’s daughter suffered HIE at birth. Five years later, she has a slew of other diagnoses, including spastic quad cerebral palsy, […]
His blue eyes lit up the room and his smile, though rare, was beautiful. His life on earth was not long enough, but in his 17 months, baby Will touched so many lives, his mother Tara Oliver said. Will suffered HIE after his mother’s splenic artery ruptured when she was pregnant, causing massive internal bleeding. Will was later […]
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