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Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Suzi’s Story: A Journey from Darkness into Light

April 30th, 2022  | HIElights of Hope

In 2014, Suzi made the big move from Chicago to Los Angeles to be with her husband, ready to find out what this new chapter in her life had in store for her. Together, they had this vision of what their future would look like. As people who felt most at home when they were closest to Earth, they dreamed […]

Lauren’s Story: Terrible Things Happened, But George Happened Too

April 30th, 2022  | HIElights of Hope

“To parents who have recently experienced an HIE event with their new baby—I am so very sorry that you and your baby are going through this. I want to share with you the best thing that I learned to be true. In those first days, your touch, voice, and fierce unconditional love is what makes your baby’s heart full.  You […]

Jori Bogetz, MD joins Medical Advisory Board

Jori Bogetz, MD joins Medical Advisory Board

April 29th, 2022  | News

We continue building out the most comprehensive multidisciplinary group to advise us as we grow and fulfill our mission and are excited to announce the appointment Dr. Jori Bogetz to Hope for HIE’s Medical Advisory Board. Dr. Bogetz brings incredible expertise and passion to the focus area of pediatric palliative care medicine. Through her work, she helps children and families who […]

ReAlta Life Sciences, Inc. Partners with Hope for HIE to Improve Neonatal Brain Injury Outcomes and Quality of Life

ReAlta Life Sciences, Inc. Partners with Hope for HIE to Improve Neonatal Brain Injury Outcomes and Quality of Life

April 27th, 2022  | News  |  By Hope for HIE

ReAlta Life Sciences, Inc. (“ReAlta”) a clinical stage, rare disease company addressing life-threatening diseases through harnessing the power of the immune system, announces its support of Hope for HIE, a global patient advocacy organization, as a platinum-level Partner in Hope, during April’s HIE Awareness month. HIE, or hypoxic ischemic encephalopathy, is a type of brain injury that impacts babies around […]

Hope Inspires: Steve’s Letter

Hope Inspires: Steve’s Letter

April 27th, 2022  | Family Stories  | News  |  By Steven W.

Hi. I’m Steve, and what I’m about to share isn’t simply just a pump for an extremely worthy cause because there are so many – it’s an important piece of my life’s puzzle that I want to talk about and yet it’s an issue that’s still shrouded in a lot of mystery, maybe in part due to all of the […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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