Meet Sam Villeneuve, one of our HIE Awareness Ambassadors from Wisconsin, USA! What is your story and connection with HIE? Bren was born unresponsive and was resuscitated for 15 minutes. He spent 19 days in the NICU where we heard lots of diagnoses, potential outcomes, and things we needed to do. It was also in the NICU where we […]
Meet Nisha Ramasamy, one of our HIE Awareness Ambassadors from San Jose, California! What is your story and connection with HIE? Our Brave Warrior I would like to share an inspiring story about my cute little warrior until her last breath. My lovely brave daughter is named Tvarika Dileeshvar. Born on March 9, 2022, and rested in peace under Angel […]
Meet Khadijah Holmes, one of our HIE Awareness Ambassadors from Orlando, Florida. What is your story and connection with HIE? Our pregnancy went just fine and then the life I had planned was suddenly shattered at 39 weeks. My daughter was diagnosed with HIE at birth. Our lives were forever changed. As time progressed, I learned that it changed […]
Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada! What is your story and connection with HIE? Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]
What is a Super Sib? It’s a sibling to a baby or child with HIE – Hypoxic Ischemic Encephalopathy, across any outcome or impact. Sometimes our Super Sibs are asked to take on a lot, go with a lot, go without a lot, and work through their own feelings of being a sibling to a child with disabilities, or have […]
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