This day ten years ago was not a good day. At some point in the wee hours of that morning, about eight hours after Kohl was born, we were abruptly awoken by the resident on call. She had the misfortune to inform us that Kohl started having seizures, had to be intubated and would need to be transported to our […]
Katie Taylor, CEO of Child Life On Call & Podcast, highlighted the HIE parent experience in a recent interview with Betsy Pilon, Executive Director. You can listen below, or where you listen to your favorite podcast:
A PICU Journey with HIE – by Amy Bannister DiGiacomo Expectant parents say this all the time. I probably said it too, until my second child, Oliver, was born. Now the phrase hits me in the chest when I hear it. Oliver’s birth was fine until it wasn’t. When he was four days old, he stopped breathing in my arms […]
Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were […]
Every time someone posts in the Hope for HIE groups about daring to do hard things and going out of their comfort zone to find “Hope in the journey“, it always inspires me. So, this week we took a 9 day road trip across 3 states, to 5 National Parks, some state parks, and National Forests. THIS IS WHAT HOPE […]
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